Well its back with a Vengence

So whats been happening to me lately:

Well severe chest pains started at home in Gladstone, we went to Gladstone Hospital ER and worked out it wasn't a heart attack but I knew something was happening. After an xray then follow up CT Scan the next morning i had lesions on my lungs of some sort. The next day I went to Rocky for dialysis and I requested anchor blood tests be done " Takes 3 days or more for those to get back "

Still with chest pain I was given a course hard antibotics as not sure what was happening, but awaiting results. On the Tuesday I went to Rocky for my dialysis session feeling shit, and got the results of the blood tests, the Wegners was back, my reading was +160. Doctors sent me to RBWH via RFDS...

And after not much debate and a few more CT scans it was determined that my Wegners was active again and the doctors went into full swing trying to get on top on it before it does to much damage.

The wegners had devoloped 2 large leishons on my lungs and they started to hemrage and bleed i had a shocking night my Stats droped rapidly i became oxygen Dependent and coughed up alot of blood.

With that I ended up in ICU for 6 days, with lots of meds and the assistance of the BPAP machine a machine that forces air into your lungs I managed to process from ICU back to the ward, alothough I was still recieving dialysis and plasma pherisis daily.

Within approx 7 hours of being in the ward I was seriously ill again, so instead of my lungs this time its was my belly I was in excrutitating pain and the nurses were only offering pandol and my pain score was an 8 ... unfair right. I called my gf and mum to come up it was 2am in the morning and I needed them as noone was listening. When they arrived things finally started to happen I was given drugs and taken for an xray a ct scan and seen by all the doctors but it was 9am when my pain was finally under control and I was given a nasal gastric tube and told that i had a bowel obstruction. Just what I wanted!! This is happening in the same order as last time my disease attacked I just hope it isnt as bad. Im still recieiving treatment in the RWBH and will be spending christmas in hospital luckily I have my family all here supporting me.

Anyway what else has been going in my life ...there are good things so wegners sufferers out there realise for all the times we struggle we get a bit more of the good times to :)

So Ive been trying to do things on my bucket list this year, its never to early to start. Ive been skydiving with my big bro and friends it was amazing. I managed to go back to work even if it was only on non dialysis days. I worked on an old 79 fairlane a V8 finally. I moved it to my girl friends house and hopefully well be well on the way to starting a life together. My fistuals fully functioning and been a great acess during this treatment.

Anyways Ill fill you all in when Im out of here and let you know what happens.

Working Fistular

Any whoo i had a Fistular created in my left arm this was the 5th attempt!!! and yes they got it right this time.. 58 staples and a 30 cm scar .. iv been useing it for dialysis for a while now and have had no such probloms also i got my permacath taken out its been in my chest for a good 15 months or so .. so i can go swimming and skydiveing


speaking of skydiveing
i did the big 14000ft jump in Hervey Bay NOV/20th
did it with some friends heres the link to my jump got the whole thing on video enjoy haha Trev's Skydive.


To Be Continued for now sleep :)

3Rd Time lucky

Well here i am again Finding myself in Brisbane Hospital yet AGAIN.
It's another infection of some sort related to the Perma'Cath i have in my chest for dialysis
none of this would have happen had the surgeon from Brisbane hurried up and done my fistula
but hey beggars cant be choosers hopefully i will get it done soon :) and get this infection cleared up asap..
On a Much better note i got a girlfriend ( LOUISA ) aka Cake Ass .She is very supportive and Pretty he-he ill upload some picks ^^ from new years in Rockhampton had heaps of fun that night..
And together with the help of my mother we have launched a campaign to get Dialysis in Gladstone
here is the web address if you are interested in helping us www.TrevZplace.com . We also have T-Shirts available SOON.. And we..... Well Louisa recently attended the Local calliope football match with our banners and shirts and petitions and managed to get Approximately 550 Signatures Thankyou heaps Louisa/Jodie/and others :). I cudent make it because i was being flown via RFDS to Brisbane because of this infection . any way for more info on upcoming events go to my website.. heres some pictures from the event.

:P

The good old days wen i was aloud to drink beer

Im on Dialysis !!

Well I am finally updating my blog .. iv been oh so slack ha ha so much to say ... any ways whats happened since i last posted .. A LOT! and not all is good news .. well as it turned out my Wegner's came back for another little stint .. it attacked my kidneys causing me end stage renal failure .. and now I am on Dialysis 3 days a week and as our town does not have dialysis i travel 220klm round trip every Tuesday Thursday and Saturday its very hard to get there and back and Really frustrates me because Gladstone .. where i live is growing really fast we have a hospital and we have many dialysis patients but still no dialysis unit here i have set out on my own little adventure to try and bring Gladstone Dialysis .. here is the link its only on facebook so far . Trev's campaign
.. Please take the time to have a look at this and support us

.. any way back to telling you all whats happen
on a better note i got to go to the Summer Nationals in Canberra with my dad i have all ways wanted to go and it was a pretty big job organizing dialysis in Canberra but mum sorted that out and it was not to much trouble for me i all-so have some pictures from there . on here Big Day Out on the Gold Coast i was suppost to stay on the coast ( the picture top left ) but i was sick in hospital and i got an infection in my per-ma cath lines and they kept me in and gave me a day pass for big day out. :) i had a blast and got to spend bulk time with Louisa shes a really close friend to me she means alot to me as-well. :) but even out of hospital i managed to end up in the medical tent ( The picture top Right ) .. my dressing fell off my per-ma cath wound and louisa was freaking out about it humm .


so much more to say but so little time to wright ill add to this asap .. :) Thanks for taking the time to read my Blog